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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: May 26 10:50am | Replies (6004)

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@rwinney

Sorry, I just keep having thoughts on lacking research and urgency for peripheral neuropathy. It, for the most part, is an invisible disease which is not as prominent to reaction. It's human nature to react to a visual. I've witnessed first hand someone on crutches or with a cast getting immediate sympathy and recognition of pain over myself. My own husband responds more when my legs are fully wrapped in heat because he visualizes and reacts with empathy. The intense pain, burning, cramping, weakness, stabbing, electric shocks etc...is not typically seen externally by a stranger. Plus, for the most part, neuropathy is not a known killer, but a debilitater. Game changer!
This is only my opinion.
Rachel

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Replies to "Sorry, I just keep having thoughts on lacking research and urgency for peripheral neuropathy. It, for..."

Very well put I share your pain
Take care

@rwinney Rachel, you are so right. My mom in law, God rest her soul, got livid when people used handicapped parking who were not in wheel chairs. If she could not see it, it didn't exist. She had MS, and used a walker. I used to try to reason with her that not all illness can be seen, but it was like talking to a wall. My mom had severe emphysema, and needed handicapped parking to get immediately into air conditioning, so that she could breathe! Some people lack empathy, intelligence,.....so many things. What amazes me is that there really are no drugs specifically for nerve damage. But my neurologist said, "nerves are very smart, and very hard to deal with!!!!" Who knows. I know that I am willing to try everything and anything not to hurt. Sometimes I try to keep my feet really still, because if I don't move them, some of the horrid senses that I feel, can't be felt. I do whatever helps. I would put mustard on them, if it helped. And if handicapped parking helps, people need to use them. I think we need to practice forgiveness from lack of empathy, idiocy, whatever....A forgiving heart can be peaceful.....Lori Renee