Hello @kscott42, Welcome to Mayo Clinic Connect. I know it's difficult when you are pain and not finding something that helps. It's good that you are doing research and trying to learn as much as you can about your conditions. There is research being done but I'm sure it's taking a backseat under the current health crisis. There are a couple of good reference sites available if you don't already know about them.

Neuropathy Commons -- https://neuropathycommons.org/
The Foundation for Peripheral Neuropathy -- https://www.foundationforpn.org/

@jenniferhunter, @jimhd @rwinney and @artscaping may have some suggestions for you.

You mentioned struggling with your sacral plexus nerve, have you had a back injury?

Hey Kenzie @kscott42. Welcome to Connect! Happy to have you join.

Given your story, I think this may be a good place for you to Connect with others who share your frustration, pain and concern for lack of peripheral neuropathy research. I'm right there with you on that.

I'm hanging on to my forties but, it's about to end and turn over to that "half century mark"! And you know what...I could care less about the # because I've got so many bigger fish to fry regarding my health and quality of life.

I've experienced several diagnosis, diseases and whole new perspectives on how to live with what life handed me. It sucks pretty bad on many a day. ☹

As far as suggestions...well, I've had my fair share of nerve blocks and RFA's. In your case, you have to do what you have to do in order to walk. You sound like a veteran of pain at a young age but, I will throw out some things that aid in my overall SFPN attack. Note that I can barely walk beyond 10 ft regardless, however, I feel that a small amount of each component contributes.

1. myofacial release
2. supplement regimen
3. warm to hot (if tolerable) bath/shower
4. topical relief cream/lotion/oil
5. healthy diet (reduce sugar/salt/processed food)
6. mild stretching (I can't excercise)
7. meditation and mindfulness
8. listening to my bodies needs and acting
9. heat/ice
10. balancing my capability of activity/rest

Then of course there are drugs...I need opiod therapy and anti seizure. Evenings I need medical marijuana or days also, when opiods aren't enough.

I'm done with injections and infusions. No game changer for me. So, now I think outside the box and am pending admittance to Mayo Pain Rehabilitation Program. Had my nurse interview today actually and she agrees that I have now gone into Central Sensitization. Another hurdle to jump but, hey at this point...what else can I do, but hopefully continue to gain knowledge.

I'm really sorry for your life challenges and hope that even just hearing about others griefs, helps a bit. It does for me when I'm really down. Always nice to know you are not alone.

I wish you well and please know that we are here for you. Comfort in numbers.
Rachel

@kscott42
PS: Thank you for attempting to raise awareness when you were able. I really have no clue how to generate awareness and push this disease to the forefront.