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Bladder Cancer Group: Introduce yourself and connect with others
Bladder Cancer | Last Active: 4 days ago | Replies (525)Comment receiving replies
My husband had Muscle Invasive Badder Cancer. He had immunotherapy, chemo and radiation. He has been a year out cancer free, However. He has constant burning to urinate, and even when he isn't urinating. He urinates 14- 20 times a night. at least it is better than when he was going 45 times a night. or every 5 minutes. He has tried all kinds of meds to help with this.
Has anyone else had this problem and found a way to relieve the constant burning pain?
Replies to "My husband had Muscle Invasive Badder Cancer. He had immunotherapy, chemo and radiation. He has been..."
@vlewis that sounds terrible to be ongoing for so long. My husband didn't have radiation for his bladder cancer but never had burning like that with chemo. He ended up with a radical cystectomy and neobladder due to recurrences but is cancer free curently.
What do his doctors say about this prolonged symptom? I know from my experience with head and neck radiation that it takes a LONG time to heal the burns and damage. But after 70 Gy of radiation, my mouth and skin were healed and not painful by 6 months after it ended.
Have you considered a referral to a large cancer center or teaching hospital that specializes in Urologic cancer? I hope more patients chime in here with their solutions.
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@vlewis - I have read all that everyone is going through or has gone through, I can really understand, and feel for you... But I didn't see anyone having the issue of the constant burning after the radiation treatment on the bladder. It has been a year and a half since his last radiation treatment. Does anyone have or had this issue? If so did you find anything that helped? Because everything that has been prescribed to him so far has not worked.