I cannot believe I have run across this topic. I recently learned of hEDS and upon extensive research realized I have had this since childhood, and evidently my dad did also. Although he is long deceased, looking back, we shared the weird phenomena of double joints in our hands, arms, knees and folding ankles. We also shared an extreme bone chilling cold even when it was hot outside. I also have the stretchy skin although mine does not pull out as far as some of the pictures I have seen. My ankles were so bad about folding over when I was a kid, and they just said it was weak ankles. Now that I am 74, I am experiencing more joint issues with my knees and one shoulder. They just slide out of joint when I barely move the wrong way. It is excruciating until I can get them popped back in with much help. The first time my knee slipped out, I thought I was going to have to call an ambulance because I could not even stand on it much less walk. I am also experiencing more issues with my jaws when I have dental work. My PA has recommended a referral to a specialist in Dallas, and although it is not close by, I am considering it. I do not know that anything can be done except addressing each issue as it comes up, but I would like to know more, and I understand it can be an issue with certain types of surgery and that I would at least need to let the surgeon know of possible complications. I am also not sure if my gastrointestinal issues are related. There is a lot to explore, but it is also nice to find out that many of my lifelong issues may actually fall under one diagnosis umbrella.