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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 2 days ago | Replies (6891)Comment receiving replies
I am Ken Lasbury with peripheral neuropathy idiopathic and numbness only, in a walker although I was riding 10 miles a day on my bike months ago for years but I fell too often getting on and off the bike. I am no longer riding.
A year ago I underwent stem cell injections two times and spent $20,000 without benefit. I have now begun hyperbaric therapy and have paid for 20 sessions for the next month. I have completed four sessions and my condition is worse although I read that it can happen and temporarily. I am also at a point where I am installing ramps for a wheelchair. I am 78 years old and a former executive at Scripps Research and UCLA school of medicine. Hbot is a wild card but I’m willing to try anything at this point. I’m looking for advice.
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Hi Ken @kenfromranchomirage, I do think stem cells offer a lot of hope. But where there is hope, there is also hype and charlatans. Just saw this recently and completely agree with it.
-- FDA must regulate stem cell therapies to mitigate risks to patients and the public:
https://www.pnas.org/doi/10.1073/pnas.2508586123
I'm not sure that Hyperbaric oxygen therapy (HBOT) for neuropathy is ready for prime time yet either although there is some evidence it may help.
"HBOT has been shown to have antinociceptive and analgesic effects in animal models of inflammatory, neuropathic, and chronic pain. Human studies demonstrated beneficial effects of HBOT in improving clinical outcomes such as pain scores, pain-related symptoms, and quality of life. A systematic methodology of HBOT application is necessary to confirm its safety and efficacy."
-- 2021 - Mechanistic Rationale and Clinical Efficacy of Hyperbaric Oxygen Therapy in Chronic Neuropathic Pain: An Evidence-Based Narrative Review: https://pmc.ncbi.nlm.nih.gov/articles/PMC8084668/
I do understand the drive to find something that helps this ugly condition that can be devasting for a lot of us. What helps me is to try and keep learning as much as I can about the latest treatments that may provide some relief which is why I like the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/learn-about-the-latest-in-peripheral-nerve-research/