Hello @michaela258, and welcome to the NETs support group on Mayo Clinic Connect. I'm glad that you found this forum. NETs are a rare form of cancer, and we all have questions about treatment and what to expect. We do have many members with Pnets.

Here is a link to a discussion from a member who has NETs on the head of the pancreas:
--Need more information on NET in the head of the pancreas
https://connect.mayoclinic.org/discussion/need-more-information-on-net-in-head-of-pancreas/
I would encourage you to read the posts. I would also like to invite @tomrennie to this discussion. He is also a mentor in the NETs group and has pancreatic NETs. I'm sure he will share his journey with you. I would also like to invite @lindabees, whose spouse has had NETs in the pancreas for many years.

As you are new to this diagnosis, my first suggestion would be to seek out a NET specialist. These are oncologists with specialized training and experience in NETs. Not all general oncologists have expertise with this form of cancer, and it will be to your advantage to have at least one consultation with one of these specialists. There are NET specialists at all three Mayo Clinic locations (appointment information is available at http://mayocl.in/1mtmR63). If it is not possible to be seen at a Mayo facility, here is a link from the Neuroendocrine Tumor Research Foundation with a listing of NET specialists in the U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/page/8/

How are you feeling, @michaela258. Were there specific symptoms that led to this diagnosis?