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Alzheimers care and treatments: Consult with Mayo Clinic?
Caregivers: Dementia | Last Active: 11 hours ago | Replies (113)Comment receiving replies
@jlharsh and @alju, Janell, thank you for sharing the discussion link with @alju. I am happy to answer any questions you have that I have knowledge of. As Janell said, this board is for anyone anywhere that needs information or just needs to vent, cry, or scream.
My wife is on her 18 or 19 Leqembi infusion and is tolerating it well. She is also on Donepezil and Memantine. I have pulled back on the Memantine to just one dose a day instead of two. Just trying to minimize the chemicals that go into her body cause who knows what it may be doing that we don't yet know about. We also recently started going to Speech therapy and it has been very helpful. She doesn't have any issues with talking but it provides assistance with day-to-day activities in addition to helping her with a strategy to find words among other things. The therapist must have extensive experience with AD/Dementia, otherwise they will not know what the patient needs.
Replies to "@jlharsh and @alju, Janell, thank you for sharing the discussion link with @alju. I am happy..."
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I am so sorry you are frightened right now @alju. It is scary not understanding what is happening and not feeling like you know what to do. It makes sense that you are totally overwhelmed. You really are in a good place here.
Thank you for sharing more about what you are feeling. You may not see it clearly right now but I read some potential good possibilities for you.
- You have connected with @japlok who has walked your path with his wife. Others may join the conversation as you hang here.
- You mention having a PCP who can help you. If it were me, I would see him/her as soon as possible to help navigate and also connect me with some counseling/therapy to help process and manage my stress.
- While not physically close to you, you have family who may be able to help. I live hours away from my family currently. It has been sad and confusing at times. I can also say this is helping me figure out what I need and how they can help me from a distance. My husband just participated in my recent appointment via phone. If it were me I would let my family know what is happening.
Did you decide to contact your primary care provider?