My husband is in week 8 of memory care and now he is saying “ I gotta get out of this place. “ makes me sad but I am also trying to have some sort of life back. I was visiting every day and now taking a couple days off. The activities don’t match him. He hates arts and crafts. I just printed 200 activities but honestly with his Lewy Body and AD he gets distracted and angry. The staff do not push him to do anything because they are screams of his agitation. He is on some meds and they are careful with them as they want him to be himself which is social, wanting to exercise, and also anxious and bored at times.
It is so tough to visit.
I’m starting to take him out to dinner or activities in Independent living.
I move to the CCRC in August. I’ll be in IL apartment a half a mile away.
He is safe. Eats well. But is in a beautiful unit with 10 little old ladies and 2 other men who don’t talk.
Friends want to visit but he doesn’t want them although he does enjoy the residents around the other levels.
I watched Robins Wish last night about Robin Williams last days- memory loss, anxiety, sadness, and finally suicide. They found out his diagnosis of LBD after he died. They did not have skin biopsies then.
I leave and say “” I love you” and my husband says “ Sure you do…” sarcastically. This is so hard.