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Scleroderma (Systemic Sclerosis): Anyone else?

Autoimmune Diseases | Last Active: Jun 6 10:18am | Replies (93)

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@altabiznet
Wow, all those meds! I feel somewhat overwhelmed.
But I will try to answer the question about how I got better. At first my PC doc had me on (lisinopril?) to reduce the swelling (edema?) in legs,ankles,feet. And started oral iron supplements (blood values were low). And I think a steroid for a short time. I am afraid I may have blocked out some of that time in some denial or something. I have always eaten a healthy diet but I altered that somewhat to try to alleviate GI symptoms. Oh yes - gi doc had me on an antibiotic to reduce bacterial overgrowth (had a lot of diarrhea). I tried to continue/increase exercise as I became able. And then, I don't know-just got better.
I guess I have a mild version of the disease. Even now I have periods of flare up and regression. I asked Rheumatologist if I could have been misdiagnosed. She said I had all the antibodies, blood indicators of scleroderma. So, don't know. I have sometimes thought that my Rheumatologist is restricted in what meds she can use by the HMO and is not able to use newer, maybe experimental ones.
Anyway, thank you very much for your answer. I am trying to learn everything I can. It can be hard to discern legitimate, scientifically supported sites, advice.

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Replies to "@altabiznet Wow, all those meds! I feel somewhat overwhelmed. But I will try to answer the..."

@80skw Please check out the Scleroderma Foundation information on YouTube.
I am sending you my best wishes for navigating this difficult autoimmune illness.