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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@birdierobin

Hello everyone . I was in a minor accident in 2011. My Ulnar Nerve got compressed at the elbow and required surgery to release. The surgery took care of the numbness below the elbow but I have been left with extreme neuropathy pain above the elbow. The Drs play dumb to what’s happening. Several MRI’s, reveling disc bulging with minor central protruding effects they say isn’t bad enough for surgery . The pain is so severe I disagree. Meanwhile, I slowly have lost a lot of use in my left arm. Now my balance is gone. Which C4, C5 controls. Now they say I have Parkinson or Multiple System Atrophy, Supra Nuclear Palsy or Hydrocephalus. My appt with Mayo is March 24. I don’t know what to think anymore. I am 63

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Replies to "Hello everyone . I was in a minor accident in 2011. My Ulnar Nerve got compressed..."

Hi, @birdierobin . I think that talking with the neurologist could be the right thing to do. Have you looked online to research your symptoms? Doing the research could give you an idea of what questions you should ask the neurologist.

Jim

Hello- One can't blame you for not knowing what to think anymore. What I think is just what @jimhd said...do as much research as you possibly can (or enlist the help of soneone), go to Mayo Clinic and give them "the what for"!!!

If you look at any possible diagnosis through Mayo's site, they generally provide a good list of questions to prepare before your visit and offer questions to expect from the Drs.

Wishing you all the best at your appointment in March. Have a peaceful evening.
Rachel