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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@jimhd

@steeldove and others

I tried every medication remotely close to effective in treating neuropathy pain, including Gabapentin, with either little to no effect or had unacceptable side effects. My siblings swear by it, but I felt nothing.

I haven't researched the charges made in the NYT article, and I've never heard claims that it has no effect on neuropathy pain. I wonder what qualifies the reporter to make the judgment calls made in the article. Obviously (so it seems to me) they don't have nerve pain that is intractable, or they don't have pain that's been brought under control by on or off label medications.

The bone they're picking appears to me to be that most doctors prescribe it in ignorance or indiscriminately, as they have historically done with opioids. I've read and heard many people say that it is an effective medication, enough so that I don't swallow everything the naysayers say or print. I'd like to know what people who are credible witnesses and who can cite credible tests would have to say.

It's hard to dismiss the testimonies of the many people whom it helps. Even though it didn't work for me, (and I don't remember what the side effects were that kept me from continuing to take it) it's certainly helped a lot of people. Is it possible that we're going to see a big political gaba scare that will put prescriptions at risk as happened with opioids? It's criminal to target those of us who have a history of taking the opioids and Gabapentin/Neurontin responsibly that our doctors promised would treat our pain. I'm disturbed that my PCP who had readily prescribed an opioid, specifically for pain, is now trying to get me to believe that it isn't intended to treat pain. Do I really look that dumb or gullible. The whole mess has me taking what my doctors are telling me with a gallon of salt.

Jim

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Replies to "@steeldove and others I tried every medication remotely close to effective in treating neuropathy pain, including..."

Jim - your post reminded me of another thing that happened when I was on the anti-depressants!

I had been put on a higher than recommended dosage because I had come very close to ending my life on the highest recommended dosage. I was hospitalized during this period of time (voluntarily) - where I received EXCELLENT care. But I remember going to one of the nurses at one point saying "I feel like I want to quit smoking, and I think it's the anti-depressants that are causing that." I was told that I should NOT quit smoking because doing so would place additional stress on me and risk my recovery from clinical depression. So - although I no longer felt a desire to smoke - I kept smoking.

Fast forward many years: It was discovered that at least one type of anti-depressant can be used to help people quit smoking. It comes with all kinds of dire warnings - including suicidal thoughts - but it works to help smokers quit, and is prescribed for this purpose.

Drugs sometimes have impacts they were not designed or prescribed for. A good example: An anti-depressant that makes some people suicidal, cures some of clinical depression, and makes others want to quit smoking. My conclusion: None of us should layer our own personal experience over everyone else. (That is pretty much a life truth, isn't it?)

@jimhd
Good morning, well it is here,
Same story here Jim. I was on 3600 mg a day before the generic came out and it didn’t help my neuropathy or my seizures. Although I never had any side effects. My brother says it helps him and I know someone with fibromyalgia who says it helps her, go figure.
Jake