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Any Tips For Tapering Off Prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: May 27 9:17am | Replies (145)

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Profile picture for emrose @emrose

@sassysaveur
I was diagnosed with PMR in March of 2025 by my GP.
Prednisone helped tremendously, but my CRP and SED kept climbing. Finally saw a rheumalotogist in October, where he daignosed me with GCA. Inflammatory markers still high, and based DX on symtoms. Unrelenting headache, pain in jaw, temple, and ear - all on right side. Plus night sweats and weightloss.
Upped prednisone and added Actemra.
Had bilateral biopsies and CT scan couple weeks later. Didnt show arterey damage, but still treated for GCA.
Had a relapse this february, back up on prednisone and switched from actemra to Rinvoq. Rollercoadter ride for sure!
I think having a good rheumatologist is key. The cant diagnose either condition based on blood tests, but a combimation of symptoms.

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Replies to "@sassysaveur I was diagnosed with PMR in March of 2025 by my GP. Prednisone helped tremendously,..."

@emrose your story is very interesting. Can you tell me more about your jaw pain?what does jaw pain feel like to you? (I’m interested in that symptom in particular and how others have experienced it. ) thanks