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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
You are correct in your analogy of interviewing. My Neuro is a brilliant man but lacks bedside manner and empathy, unless I'm crying. I have felt trapped with him and because he is highly acclaimed, Im afraid to search for another who may not know as much or be as connected in the field as he. I go back for a follow up Wed after a slew of new blood tests which he tried to reply (via portal) by referring me to a Gastro Dr (for new findings) with not so much as even addressing the chief reason he did the blood work up in the first place...my heightened pain and failing body. This is what I mean. UGH! Because I know my stuff and generally come in prepared, he appears to be put off. I am polite in my presentation except when I get beyond frustrated or scared. That may result in tears or mild sass. Anyway, thanks for the advice. We all continue to help each other through experience. Unfortunately, I do not know specifically the nerves along the top of a foot but do know that mine burn and are painful from any form of flexing or pressure such as snug shoes, walking, standing, driving etc... which is why I cant drive, stand long or walk much. For me, due to Small Fiber Poly Neuropathy.
Replies to "You are correct in your analogy of interviewing. My Neuro is a brilliant man but lacks..."
Follow up:
Saw my Neuro today and he was his usual dismissive, arrogant, challenging self. He did come around, after my persistence of wanting to rule out more surrounding SFN, and referred me to another neurologist for further review and EMG/nerve conduction study. I'm not 100% sold on him doing this because he's nit qualified to help me in these areas any longer or he chooses to rid of me. Win, win either way. I'll hang in there with him for now with migraine treatments which are cut and dry but, not sure I will ever care to work with him again regarding SFN.
@qball2019 - thanks so much for giving me a nudge in the right direction. It was what I needed to hear at the right time as my medical relationship with this Dr has caused me undo stress. It's like sticking around in a bad marriage for the kids. My SFN, aka "the kids" , made me feel trapped to not cut my nise off to spite my face. I deserve better. So, I guess it was meant to be.
He is graciously helping to expedite the referral for me and we shook hands upon departure. Fair.
I suppose his ego and arrogance in hyping himself up made me believe he was the only one to help me and that's not true. Lesson learned. Boy, do I keep learning.
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@rwinney
Oh my gosh! Huge red flags there. I absolutely understand your concern regarding finding a new neuro. I would suggest "interviewing" a few though. When you find someone else you feel comfortable with then tell the current one you're moving on. It's great that you know your stuff, you need to. It is absolutely ridiculous that he didn't explain what the tests were for or what the new findings are. Things like this really upset me. It's the doctor's responsibility to discuss these things with you. You pay plenty of money for those things. You should really make a list of questions and call his office for some answers. You can also call your insurance co. and request a case manager to help you navigate. Please let us know how your next visit goes. I hope it goes well.
I've been there with the tears too, I feel you. I've had many meltdowns in front of doctors over the years. You feel like nobody understands you or believes you and you're just left suffering. The only people who understand what pain does to a person are those who experience it themselves.
Terri