@darlingtondoll and @rwinney

Thank you! I truly care for anyone in pain. I have suffered for 17 years now and have seen so many doctors that brushed me off and labeled me a "chronic pain patient" like I didn't matter, a few thought I was a drug seeker, many that didn't believe anything was wrong with me, etc. It's been such a nightmare trying to just find some help and a bit of relief from the pain. People don't realize the affect it has on you physically and emotionally. I wish I had someone to guide me to the right people. I have 4 providers that actually work together on my care and it's just so great. I hope she is close to me because I can also recommend my pain management and physical therapist. Dr. Bluestein has been so wonderful to me. She is the first doctor that has ever taken the time to read through my medical history from start to finish. She is also extremely informative and is willing to think out of the box. I was excited to find out that she has also had a Tarlov cyst so she completely understands my pain. She has people from all over the U.S. come to see her so why don't both of your make a trip? I know you won't regret it! 🙂

I am still looking for a neurologist. Nobody that I have asked can recommend a decent one within 100 miles and definitely not one that would be willing to recognize my Tarlov cysts. If anyone has any suggestions please let me know.

Take care everyone!

Terri

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