@sassysaveur
So sorry you are in limbo regarding the GCA. I had the strangest onset of my GCA (no PMR as of yet, but sore and stiff exists now and then). I had the biopsy and they couldn't even find my artery on either side, so only have the symptoms to diagnose with. No clear diagnosis - So I guess I am going to error on the side of GCA because it is nothing to mess around with. Like so many have said, you have to be your own advocate and you know your body best. I am in constant denial of having GCA and would like to have a PET/CT of my head if that would tell me, but I fear unless there is a flare up, nothing would show. SO- in summary, I feel like I'm crazy too, still denying GCA (but really know better.) This whole auto immune illness is so elusive and different for each one of us. I will keep checking on this thread to see if someone answers you with a definitive answer! P.S. I did make sure that GCA was in my medical records so if I end up in ER, they can see it.