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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hi! I’m Janelle;) I’m a mom to an almost 2yr old beautiful boy, wife, daughter etc who has lots of chronic pain conditions including EDS, CRPS, IC, LPHS, Fibro etc. I’m trying to figure out how to treat my pain with less pills and more treatments such as IV lidocaine, magnesium, ketamine. I’m sick of pill pushing doctors and am in the process of replacing half my current doctors. We live in northern Wisconsin and I find it difficult to find alternative treatments that aren’t far away. I’m looking for advice, education, peoples experiences and help finding the pain relief I’m going after, especially for my CRPS neuropathy. Hello and I look forward to meeting you and some good old open minded discussions! Xoxo
Replies to "Hi! I’m Janelle;) I’m a mom to an almost 2yr old beautiful boy, wife, daughter etc..."
Hi and welcome! - I'm Rachel and you my dear came to right place. You will soon see how much support, compassion and knowledge comes from this forum.
My babies are grown (soon to be 19 and 26) but they remain my main force, focus and reason for persevering. Plus, I'm pretty stubborn and don't like to be knocked down by anything, including disease!
Best thing for you to do is continue being your own advocate, comb the many threads and posts regarding your diseases, chronic pain, medications and procedures. Others life experiences are far more inspirational that what any Dr or text book (internet) has to pprovide.
Be mindful however that each is unique to themselves and you may need to navigate through it for your best take away.
Best of luck and happy you are reaching out. What a step in the right direction!
Be well and be thankful you have those cute little cheeks to smooch.
Warm regards,
Rachel
@gashmell Hello!! I'm also from northern WI, Lakewood to be exact. Are you far from me? I have 4 providers that I see and it took many years to find them. I had to weed out so many over the years! Anyway, one of them is someone I think you should see. Her name is Dr. Linda Bluestein and she owns Wisconsin Integrative Pain Specialists in Weston (right by Wausau). She specializes in EDS and many other areas as well. She can talk to you about infusions too. She gives me Ketamine troches (dissolve under your tongue) and they work very nicely. She has all kinds of tricks up her sleeve. Please check her site out https://www.wisconsinintegrativepainspecialists.org/ Please let me know what you think and if you end up going to see her. Best of luck to you!
Terri
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