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My treatment journey with tongue cancer: And yours?
Head & Neck Cancer | Last Active: May 26 11:38am | Replies (29)Comment receiving replies
I think your experience is something we’ve all shared to some extent. After radiation I began to experience lymphedema (which I wasn’t told anything about during radiation treatment). YouTube videos (“Kelly cancer pt” has some great videos) has given me some great tips for how to deal with this and I’ve been practicing self massage for two months and have kept the swelling down to hardly noticeable levels. My surgeon in Boston has sent me to a certified lymphatic massage therapist who has shown me further exercises to do along with the proper techniques as well as ordered a headset to wear at night to push any swelling out of the neck area. Waiting for the headset to arrive so I can’t comment on its effectiveness.
Otherwise daily massage and physical activity will be your best option for combating this issue.
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@albion223 thank you for your feedback. My conclusion based a on questions I had, is that my doctors have little to very limited knowledge of lymphedema and lack formal education on this. That is why I was told nothing ahead of time. Listening to the video of the informed doctor from Stanford, he says that in ALL medical school doctors get maybe less than an hour on lymphonic system. Self education is all there is
Along with a certificate therapist chosen from the criteria I posted.