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Does anyone have experience with Rituxan or Remicade for RA?
Autoimmune Diseases | Last Active: Jun 29 10:11pm | Replies (26)Comment receiving replies
Remicade is one of the few drugs where your doctor has the flexibility to increase the dose and to shorten the schedule from 8 to 6 to 4 weeks so you can significantly increase the suppression with Remicade. Not recommended for anyone with any underlying/possible demyelinating diseases. I did two loading doses and developed ataxia so I had to stop. 1’m at 3 weeks on the Rituxan and can now move my left arm. Hoping I can soon recertify to drive at this rate!!
Replies to "Remicade is one of the few drugs where your doctor has the flexibility to increase the..."
@pm56
In some cases, like mine, there is not shortening the schedule because it is not covered by Medicare.
I had a limit of an infusion once every 8 weeks. That was it. When Remicade stopped helping my symptoms, I switched to Simponi. Also once every 8 weeks.
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@pm56
Thank you for sharing. Your experience is consistent with what other patients with neuropathies have posted in various discussions - Rituximab is helpful with treating autonomic neuropathy in addition to RA and systemic sclerosis.