Hi Ruth

Welcome to Connect. You will see my response earlier to a newly diagnosed member. Well, same thoughts are for you. It really does suck and is unfortunate ...the way we need to fend for ourselves with this disease.

I need to sleep in my recliner 50% of the time for pain reasons like yours. It's not fun waking up feeling like you've been hit by a train

My fears of not walking one day are the same as yours and I understand how much negative thoughts can consume the mind.

My best advice is to take each day as it comes, as hard as it may be to stay in the moment. Learn as much as you can about the disease. Understand that each persons case will be unique to them. Keep connected and talk about what you are going through.

Wishing you the best. Take care
Rachel