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Does bladder cancer treatment continue ad infinitum?

Bladder Cancer | Last Active: Jun 3 12:45pm | Replies (15)

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@jaxfl
Well... this coming Thursday I go for my second cystoscopy following the completion of the 6 BCG treatments. Soon after I had my first scope which showed a lot of inflammation along with another spot of inflammation. He wanted to wait about 6 weeks and then perform another scope to see if the inflammation abated and also to learn if that questionable spot reflected something other.

I should have told him I wanted to go to another hospital for the BL since he only uses standard white light but I have far too much on my plate to do that.
Tomorrow I am having cataract surgery and also I will probably have to undergo knee surgery so I am overwhelmed.

If this cystoscopy shows the growth of new tumors - not only will I be extremely upset (to put it mildly) but I will also not continue with the BCG treatments. These have created far too much havoc; severe pain in joints - hip and leg (I could barely stand up straight the pain was so intense) in addition to increased incontinence which my doctor told me would subside in time (not true). When I complained of my severe pain in my right side, he sent me for sonogram of my kidneys- wanting to check if something was amiss. No problem there.

He did a urine cytology and it came back negative.

I don't know what will be next if tumors will be found. If he offers only BCG, then I will have no other choice but to travel into Manhattan to a cancer hospital and seek their guidance.

Bladder cancer is a journey for sure. I hope I possess the inner strength the members in this group have.

Wishing all hope and ultimately success to beat this opponent.

Bobbie

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Replies to "@jaxfl Well... this coming Thursday I go for my second cystoscopy following the completion of the..."

Hi, I found that Gem/Doc worked for me when BCG didn’t.
I have been cancer free now for over a year.
I have the blue light cystoscopies & found that sometimes incontinence was actually from a UTI.
I am also in my 80s.
Wishing you all the best.