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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (5972)

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@seniordon09

I've had peripheral neurpathy for over 10 years now !
I've been to too many doctors than I want to think about who told me that they could stop my pain in my feet and toes !!?
Everyone one of them couldn't help my pain !
I to had a nerve stimulator implanted in my lower back over a year ago and had it taken out today ( 1-30-2020 ) !
I'm not giving up, still looking for a doctor ?

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Replies to "I've had peripheral neurpathy for over 10 years now ! I've been to too many doctors..."

@seniordon09 @straightway22

I had a Burst DR spinal cord stimulator implant in June, 2017, and it has made a significant improvement in the neuropathy pain in my feet. More so the first year. Now I need to have it adjusted every 3 months, but it does still continue to improve my pain. I have small fiber idiopathic peripheral polyneuropathy and the beginning of autonomic neuropathy. PN accounts for the pain and numbness and tingling in my feet and elsewhere. Signs of autonomic neuropathy include (possibly) diplopia, esophageal dysmotility, silent reflux, ED, balance, sudden temporary knee muscle loss, who knows what else.

I've tried a very long list of medications, beginning with my PCP, then neurologists, and pain specialist. I'm taking Imipramine now, and it's the first one that has helped with the pain without unacceptable side effects. I wish I could say that my feet don't hurt, because they do, depending on my activity. It would be so, so good to be pain free for a day!

I was being treated for clinical depression, anxiety disorder, PTSD and suicidal ideation several years before the pain started. When I began feeling first numbness and tingling, then a couple of years later the burning pain, it set me back to deeper depression. Pain and depression fuel each other for many people, including me. So, not only would it be possible to be pain free for a day, it would be great not to have mental health issues for a day.

Finding the right treatment for neuropathy can be a very long process, unless you chance to hit upon the right medication right off the bat. I wish you well. Hang out here in the Connect group and see what has helped others in your shoes. We're always sharing ideas, as well as searching for answers.

Jim