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Lori, Volunteer Mentor avatar

My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 1 day ago | Replies (874)
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Profile picture for gagathemom @gagathemom

@loribmt You put words together beautifully!
I rented a pet friendly vrbo house for 3 weeks. Too optimistic of me?
If I recover quickly, I would hate to be out the non refundable money for the house if I rent it, or another, for another 2 weeks or more. However, it would be challenging to find another place to stay if I need to stay longer. Packing, cleaning, relocating. I’m still trying to figure that out. As I write this, I feel like it sounds negative. I’m grateful for so much but I am a planner and I am stumped.
I understand that every cancer, every treatment and every person is unique. I’m trying to get a plan in place so I can stop thinking about it and enjoy some time with my grandchildren when they come to visit.
Thank you for responding. I appreciate you. Wanda

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Lori, Volunteer Mentor | @loribmt | 2 days ago

@gagathemom Hi Wanda, getting ready for this ASCT (autologous stem cell transplant) an feel pretty overwhelming. Just the logistics alone can feel mind boggling. But somehow, all those pieces just seem to fall into place. For an ASCT, patients usually can assume 3-4 weeks lodging. I know you have a place locked in for 3 weeks. If you need an extension, often landlords in Rochester are pretty flexible….on either end. With extensions and early exits. There are also a ton of hotels nearby that you could relocate to if needed. But by 3 weeks you might get the all-clear to head home. Your SCT team will be able to give you a heads up for an exit projection.
comprehensive about transplants, caregiver information, after care. There are several subject headings.

Not sure if you’ve seen this or not, but here is a good care guide from Mayo for SCT/BMT and CAR=T patients and caregivers. There are several topic headings so take your time to peruse everything that’s relevant from caregivers guide, what to pack, infection control, etc.
https://connect.mayoclinic.org/blog/caregivers-for-bmt-car-t-and-hematology/tab/transplant-journey/
Haha, dare I say, “You’ve got this”…😂. Joking aside, as a planner myself I know how we like to have everything nicely sewn up, details in place and nothing left to chance. I had a zillion sticky notes and note pads with lists of items to make our hotel stay a ‘home away from home’.

Here’s a comment posted a while regarding items I packed for my 4 month stay. You might find a few ideas. https://connect.mayoclinic.org/comment/1059221/

Let me know if I can help with anything else! ☺️ What kind of dog do you have?

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