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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 5 hours ago | Replies (6001)
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@rwinney

Hi Jim

My PCP wants me to try Nortriptyline for added pain relief. I am already weaning off Duloxetine so once that's done, I will start Nortriptyline. We are scraping the bottom of the barrel. I'm going to run this idea past my neurologist as well during my 2/6 visit. Have you Jim, or anyone else, used Nortriptyline and found success? Seems like I'm quite past this drug but, I'm no Dr.

In other news...my blood testing reveals continued high copper levels, which have been high for a year now. Neuro is sending me to a gastroenterologist to rule out any liver problems. Also, I'm below threshold on Aldolase and Alkaline phos. MCV is a little over threshold.

At this point low B12 is supposedly the blame of my SFPN, which has been pretty devastating to my life, therefore, I underestimate nothing.

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Replies to "Hi Jim My PCP wants me to try Nortriptyline for added pain relief. I am already..."
tigreyes2004 | @tigreyes2004 | Jan 26, 2020

Hi
I tried Nortriptyline & it did help my pain but I got so constipated from it that I had to stop it. That was the only med that helped me with my pain. I take Gabapentin at a low dose of 500 mg of day. I take 300 mg at night & 100 mg 2 times during the day. That is so that it don't make me so tired. I also take the duloxetine. How come you are trying to get off of it?

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Jim, Volunteer Mentor | @jimhd | Jan 26, 2020

@rwinney I have tried Nortriptyline but it didn't help the pain. Back in the past I took Amitriptyline for TMJ, and it kicked in quickly. I had been having severe pain in my cheeks and sinuses for a year, most likely due to the stress of working with an abusive boss.

Jim

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Chris Trout, Volunteer Mentor | @artscaping | Jan 27, 2020

Hi Rachel, @rwinney, I like your statement....."seems like I'm quite past this drug". I began to feel the same way. Nortriptyline was very helpful for me when I was trying to accept my lot in life......coping with neuropathy. The depression was becoming more and more impacted by suicide ideation. This medication did its job and now there is a joy to be found in every day.

My PCP felt that it was an older medication that I no longer needed. I was using mindful meditation as a daily solution to depression and experiencing uncontrollable constipation which I now know was attributable to the nortriptyline. My PCP and I made a shared decision: replace the Nortriptyline on a graduated taper with a tincture of 1:1 CBD/THC. It has been 4 months and I am finally free of taper symptoms and an anti-depressant which did its job and was no longer needed.

So what is next? Duloxetine. I am going to wait for you Rachel, to finish your duloxetine taper so that I can benefit from your experience. I am currently researching substitutes.

Isn't this a wonderful thing about Connect........we share and support each other..........giving us access to ever so much information from an up-close and personal source.....other members. I want to thank all of you who have shared your taper experiences. You have helped me and I am very grateful. Be free of suffering. Chris

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