Hello everyone - Solitary Fibrous Tumor (recurring) here. Originally identified in July 2024, when my primary care doc informed me I was actually not getting middle-aged dad body (as I had just assumed) and had a CT scan done. The original tumor was massive (27 x 27 x 13 cm), and removed via surgery in October 2024. Fast forward to April 2026, when lesions appeared on my liver. The biopsy indicated a resurgence of the same type of tumor I had before... the twist is they can't find it. They did a PET scan and couldn't ID any abnormal activity.
So now I'm on my fourth day of my first cycle of chemo (Temozolomide along with Bevacizumab infusions).
Thanks for reading, and it's a bit comforting to know there are others out there.