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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@iceblue

@marazion - I spend a lot of time looking up medical terminology when reading articles like this, but I also spend a lot of time depending on context to help inform the meaning of some words. The article really caught my attention because until I was diagnosed with SFN, I firmly believed the pain was caused from something going on in my sacral area because I have a low level ache going on in that area almost all of the time....

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Replies to "@marazion - I spend a lot of time looking up medical terminology when reading articles like..."

@iceblue - I have frequent pain in my SI joint. My daughter, a physical therapist. keeps encouraging me to follow an exercise regime. (I hate execise!) She also points out that I probably have PN stenosis scoliosis and sacral arthritis all at the same time, which makes diferential diagnosis and a treatment plan challenging! You might have a similar complex of conditions? And my chiropractor friend keeps reminding me that pain in say the foot is just as likely to reflect a back problem as it is a foot problem. In plain language we are statistically unlikely to get a comlete diagnosis or a complete treatment plan unless we are very lucky in our choice of Dr. or Specialist. I have tried injections, medical marijuana, chiropractic and accupuncture to no efect. Ibuprofen helps but The long term side effects are risky so I limit myself to 400 mg perhaps twice in a month. Mindfull meditation, weight control, cycling and a healthy diet have helped me to a) to reduce pain from say 8 to 4 on average...and b) to "accept" my condition with a consequent reduction in stress, anxiety, depression. ( previously depression and anxiety relating to my condition caused more problems than the physical conditions!)

Have a happy new year!