← Return to I have a port question - looking for opinions and personal experiences

Discussion
Comment receiving replies
Profile picture for airhorn83 @airhorn83

Well now; with stage III colo-rectal cancer I was told by my oncologist and his physician assistant that the chemo port (Smart port) is used to facilitate chemo and will be removed after chemotherapy has been completed . I had been reluctant to have the port installed for months prior to the installation but they kept telling me that the port would be removed probably six weeks to 3 months after chemo has been completed so initially I reluctantly agreed to have the port. It has been 19 months since the chemo was completed and they still refuse to have it removed . I am now subject to their endless tests, biopsies, MRI's, PET scans CT scans , MRD, liver ablation and radiation, and repeated port flushes every month along with blood jabs. I have been offered numerous positions of employment as an engineer and construction manager and consultant which I cannot accept; at 83 years of age I am still able to work. It would have been beneficial to work instead of sitting around the house making an absolute pest of myself with my wife. At my age I know I am now a "short timer" and with that in mind I feel that my remaining months or years should be spent enjoying life and being productive instead of being subservient to callous, insensitive, and deceitful medical personnel on a tangent to sustain their modus operandi. I feel that I have been lied to and my trust in the medical profession has receded to less than nothing. Sorry ,but honesty is the best policy ,and please; don't dare tell me that I am being vindictive or wrong in my assessment.

Jump to this post


Replies to "Well now; with stage III colo-rectal cancer I was told by my oncologist and his physician..."

@airhorn83, I'm sorry that you feel you've been lied to. That must feel like a betrayal. I wonder if there are more questions to be asked of your team about their refusal to remove the post. Having been diagnosed with stage III, are they concerned about recurrence or metastases? Is it possible they believe keeping the port is a good idea for future treatment possibilities?

As an engineer, I can imagine you would appreciate getting straight answers and data-driven information to drive decisions. Ultimately, it should be the patient's choice. I might suggest asking pointed questions of your team:
1. What is the reasoning for my having to keep the port?
2. What are the chances of needing the port in the future? % chance of recurrence?
3. If the port is removed, can it be replaced if necessary?
4. Can I choose to get future treatment (if necessary) without a port?

@airhorn83, is it the monitoring and scheduled follow-ups that you feel interfere with your moving on and enjoying life? Or is the port itself interfering with things you enjoy and want to do?