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DiscussionI have a port question - looking for opinions and personal experiences
Colorectal Cancer | Last Active: Jun 2 5:45am | Replies (29)Comment receiving replies
Replies to "Well now; with stage III colo-rectal cancer I was told by my oncologist and his physician..."
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@airhorn83, I'm sorry that you feel you've been lied to. That must feel like a betrayal. I wonder if there are more questions to be asked of your team about their refusal to remove the post. Having been diagnosed with stage III, are they concerned about recurrence or metastases? Is it possible they believe keeping the port is a good idea for future treatment possibilities?
As an engineer, I can imagine you would appreciate getting straight answers and data-driven information to drive decisions. Ultimately, it should be the patient's choice. I might suggest asking pointed questions of your team:
1. What is the reasoning for my having to keep the port?
2. What are the chances of needing the port in the future? % chance of recurrence?
3. If the port is removed, can it be replaced if necessary?
4. Can I choose to get future treatment (if necessary) without a port?
@airhorn83, is it the monitoring and scheduled follow-ups that you feel interfere with your moving on and enjoying life? Or is the port itself interfering with things you enjoy and want to do?