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Any Tips For Tapering Off Prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: May 27 9:17am | Replies (145)

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@pmrnew

You seem to be cutting your dose in half every 7 days. I don't know if that will work or not because it is a fast taper. After you reach 10 mg it is usually recommended to taper by 1 mg per month. As far as 1.25 mg being a low enough dose for your adrenal glands to begin to produce cortisol again... my endocrinologist said 3 mg was a low enough dose if I could maintain that dose for long time. I needed to be on a low dose and allow for time for my adrenals to produce an "adequate" amount of cortisol for my daily needs. Whether or not my adrenals could produce enough cortisol in an emrgency situation was unknown.

The time it takes for the adrenals to "fully recover" depends on many factors. For me, it took 6 months on 3 mg for my cortisol level to improve. It took another year of being off prednisone until I felt like my adrenals were fully recovered. This was my experience after being on prednisone for 12 byears.

There was the issue of PMR pain coming. back when I stayed on a low dose of prednisone. I was taking a biologic while I stayed on 3 mg of prednisone so PMR was well controlled.

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Replies to "@pmrnew You seem to be cutting your dose in half every 7 days. I don't know..."

@dadcue glad I read this post of yours. I was down to 3 mgs of pred for 2 full weeks, then the 3rd week alternated between 2.5 for 2 days then 3 for one day & all seemed ok. Worked all week long. Last week went straight to 2.5 mgs. Now body is NOT happy. Experiencing pain in butt, 1 knee feels almost swollen but not quite!! (which is new!) hips bilateral pains. I still walk about 2 -3 miles even do stretches but that does nothing to help. At least I can do them but no relief. Bummed. My daughter says try increasing 1/4 mg to 2&3/4 mgs which I haven’t tried yet. I was wondering if I should just stay the course at 2.5 w/pains see if my body adjusts. I was doing so well on the 3 mg maybe I dropped too fast? I know my rheumatologist will say increase dosage like he did at beginning of this year. I did increase them to 4 then slowly back to 3. Seems I’m stumped at 3!? Dang it!! So been on prednisone for 1 yr 2 months. So has anyone tried to reduce or add dosages by 1/4 mgs? Did it work? Does the body appreciate or “approve”?