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What's your experience wtih Brinsupr (brensocatib)?
MAC & Bronchiectasis | Last Active: 14 hours ago | Replies (646)Comment receiving replies
@scoop my pulmonologist has recommended that I not even restart Brinsupri at 10 mg. Given the slowness of my bronchiectasis progression, my age (85), severity of side effects, and sensitivity to medication. He said there are some people who just shouldn’t be on it, so I won’t restart. I hope I’m not typical, and that few others experience what I did.
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@susie2
Im sensitive to medication also. I also have had 2 squamous cell carcinomas on my nose and afraid It will cause another, its one of the side effects.
I only tolerated 7 weeks, with horrible abdominal discomfort, of treatment for MAC. So now I am monitored with chest CTs every 6 months.
I worry about my lung function so try hard to do airway clearance every day. Scary at 78 years old, hopefully its a slow progression.