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cdammen avatar

Group for EDS and/or autonomic disorders

Bones, Joints & Muscles | Last Active: May 30 3:03pm | Replies (8)

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Profile picture for tamsue69 @tamsue69

Hello cdammen, I too have been told in last few years I have EDS and have osteoarthritis in several places. Have had my big toe joint fused and need the other done due to too much flexibility in the joints. Had left hip replacement and need other one done. Much complications since hip replacement in July 2015. I would simply like some answers and solutions for this painful condition they call hEds.

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Replies to "Hello cdammen, I too have been told in last few years I have EDS and have..."

@tamsue69 I am with you Tamsue. I have had 2 shoulder replacements and a revision, one foot rebuilt, bunion surgery that failed and toes fused. The autonomic issues that affect my cardiovascular, nervous, and gastric systems are the issues I want most to understand given their critical nature. Adrenal may be in there too. I got a book, called Disjointed, and am making my way through that.