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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 hour ago | Replies (7031)

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Profile picture for mistibfaith @mistibfaith

Good morning I’m excited to see this group and hopefully see if anyone else is dealing with some of the same symptoms. I’ve had back issues for a while restless leg syndrome for the last 10 years have had two back surgeries. The last one was a L4 L5 fusion I can walk Neil but now I’m dealing with neuropathy in my feet also having can’t hold onto things with my hands, dropping things they spasm and lock up my feet pins and needles they burn they turn colors starting to trip feeling numb at times starting to have a lot of spasms at night and during the day where it just locks up if I move it in a certain way on gabapentin, do you have high cholesterol but that was diagnosed in the early about 20 years ago it’s genetic in my family. I’m just looking for help. I’m waiting on the results of the EMG but the CT looked good thank you all just for any help you can give the neuropathy is getting so bad that it is affecting sleep and making my balance off and it is painful. Hope you all have a great day thank

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Replies to "Good morning I’m excited to see this group and hopefully see if anyone else is dealing..."

Hi @mistibfaith, You have come to the right place. You are not alone with your symptoms and I'm sure other members can relate. I have idiopathic small fiber peripheral neuropathy but fortunately don't have any real associated pain, just numbness and a little tingling in my feet and legs. Best thing you can do, which Connect will give you a jump start, is to learn as much as you can about your condition and what treatments are available that might provide some relief. I also have degenerative disc disease which may be playing a part in my neuropathy by compressing some of the nerves. If you haven't already seen the Foundation for Peripheral Neuropathy website, it is a great place to start learning more about the condition, treatments and alternative therapies that may provide some relief.

-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
They also have a YouTube channel where they keep all of their webinars that I've found quite helpful - https://www.youtube.com/@foundationforperipheralneu4122/search.