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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@rwinney

Hi and welcome! Interesting about the IVIG. Too much of anything can cause damage but there really does have to be a point of choosing our battles considering we do need to live now in comfort as best we can. I'm 3 years in and continue to search. It's troubling to think that at my age (46 when srarted) of the long term damage but being between a rock and a hard place I've found that my Hydrocodone, Lyrica, Duloxetine and a ton of supplements need addition help to control my pain. It was lidocaine infusions until they stopped working. My Neurologist has plasmapherisis and IVIG as additional treatments in future. As of now I'm choosing CBD and THC tincture as the add on to the my other treatment plan. Exhausting isn't it? Maybe try Kratom...It's being discussed more in this forum. I wish you luck and hope you can find more comfort in this crazy journey. Be well.
Rachel

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Replies to "Hi and welcome! Interesting about the IVIG. Too much of anything can cause damage but there..."

Your taking some heavy stuff! None worked for me except Kratom! Watch your liver!

Yes i am going to look into kranton. If you have the means definately go for the ivig treatments, they kept me going for years. I started with a treatment every 6 weeks and at the end was getting a treatment every week... Yes and i was 46 when all this crap started