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Caregiver Heroism and Unanswered Questions

Caregivers: Dementia | Last Active: May 26 2:32pm | Replies (29)

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Profile picture for dlssell @dlssell

Greetings Tom,
My husband of 52 years had a TBI in 2021, resulting in epilepsy and dementia. MC testing recently showed a component of Alzheimer’s disease. His sundowning is difficult to say the least and he is now on a low dose sedative. I’m his sole care provider, and I’m grateful and thankful for my strength and ability to care for him. I see his smiles resulting from the happiness he feels sharing this disease with me with no fear just comfort. The more of me I give to him brings me enough joy for us both. One day at a time…and pat yourself on the back at the end of each day for a job WELL done for your loved one. We’re all heroes and here for you. God bless you both.

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Replies to "Greetings Tom, My husband of 52 years had a TBI in 2021, resulting in epilepsy and..."

I cannot tell you how much your message meant to me. To know what you have gone and are going through since your husband's TBI and yet to witness your taking the time to send a note of good cheer to a stranger shows your strength of character. Yes, wise caregivers cling to helping their loved one even as they feel good reaching out to other "unfortunates." Indeed, I put that word in quotes, because most days I consider it a privilege to do all I can for my wife, a truly remarkable woman who deserved a better denouement,

In any case, I hope we can continue to communicate.

Best,

Tom G.

@dlssell I stopped my husband's sundowning by giving him 10 mg of melatonin at 4pm and another 10 mg dose at 9pm. Before that he had wandered off on my 22 acre property in a forest during the night and was found face down in the dirt with hypothermia. After that, he only sundowned once when my son forgot to give his the first dose until 6 pm.

@dlssell
"I see his smiles resulting from the happiness he feels sharing this disease with me with no fear just comfort. The more of me I give to him brings me enough joy for us both. "

I loved this. I find that people cannot imagine that this confluence of suffering and joy is possible until they witness it and have it expressed to them. Experiencing it is a gift. I think that we can make the world better by sharing this wonderful mysterious dynamic that can rise amidst loss. Others are lifted by learning of it.

Thank you for sharing.