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Caregiver Heroism and Unanswered Questions

Caregivers: Dementia | Last Active: May 26 2:32pm | Replies (29)

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Profile picture for judimahoney @judimahoney

Hi Tom:
Good for you for reaching out for support and guidance (the first step is admitting you have a problem).
You asked what your wife's expected trajectory might be, and that one is too tough to answer.
This is my 2nd year on this blog forum, and I learn so much from others.
One thing I've learned is that everyone's experience is so different, so your question is hard to answer.
So many factors to consider when even attempting to answer your question:
What is her official diagnosis, what type of dementia? There are many, many types and that will affect the outcome.
Is this familial dementia, did she inherit this from a family member?
What was her age at onset?
Does she have any underlying health issues on top of the dementia?
Knowing some of this info may guide you to the correct specialist to better address her needs.
I took Karla's suggestion and am reading Loving Someone with Dementia.
I take many free online classes for caregivers, I attend 3 support groups and am on a long waiting list to see a therapist.
Hugs and virtual support to you. 🌻

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Replies to "Hi Tom: Good for you for reaching out for support and guidance (the first step is..."

@judimahoney Judi you are an inspiration to me! Thank you for always reaching out. The things you've shared have been so valuable! Best Krala

@judimahoney
Hi Judy thank you for being so open about your experiences.
I’m knew to this! I’m the one that has early Alzheimer’s
My husband is having a hard time with this. How did you get into support groups I’m trying to hv myself and my husband find a good one for both of us.
Thanks for all you shared!
JoyceL10