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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 20 hours ago | Replies (6681)

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Profile picture for aponce @aponce

I have been living with peripheral neuropathy off and on for 20 years after a bout with transverse myelitis which was diagnosed at John Hopkins. Ten years ago and five years ago redid MRIs and was diagnosed with idiopathic neuropathy but luckily no further lesions. Have done pretty well with 1100 mg of gabapentin until the last month and cannot seem to get much relief even with close to 2000. Happy to find this group to hear how others manage PN.

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Replies to "I have been living with peripheral neuropathy off and on for 20 years after a bout..."

Hello @aponce, Welcome to Connect. Hoping other members can also share what helps them manage PN. I've posted my story and what helps me earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/.

Have you tried any alternative therapy or treatments to help with the pain?