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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Colleen, thank you so very much for this group! Hello all. While I am very new to this condition and cannot offer solutions...yet :), I hope to learn/discover soon, what works for me. Meanwhile, think I’ve found a “home” here!
June 2019, walked extensively while starting my vacation. While in motion, my feet seemed to go into shock with aches, pains, big-time tingling, and creepy-crawling feelings that eventually traveled to my knees—all within the first day. Second day on, I was chomping and stomping as if on two peg legs. Iced my feet 3x/day during the 15 day trip as the feet seized-up like pistons in a vintage car! No docs available as it was a river cruise.
Once back, saw an ortho doc who would only address my knee issues. He sent me to my GP who prescribed Gabapentin for a month (only been on it a week) and now have an early 2020 appt with a neuropathic doctor.
Trying what I can to reduce the inflammation, small/large pains, tingling and the creepy-crawlies. Walking is so very difficult. Currently getting PT for plantar fac which offers remote relief and ankle stiffness from chomping around. Bumped-up my B12, D+Magnesium, topical CBD + Diclofenac Sodium gel, bought neuropathic shoes, cut gluten from my diet and whatever little thing possible till diagnosis is forthcoming—even if it is “we don’t know what the cause is.”
Realize this is purely an introduction thread, so I’m off to read about fellow sufferers’ and their successes.
Thank you and your team for being here!!
Replies to "Colleen, thank you so very much for this group! Hello all. While I am very new..."
Good morning @southwind. Welcome to Connect. You have evidently soaked up a lot of good information about neuropathy. I am sorry your introduction was so painful and that you have to wait for an appointment. That being said, most of the Connect members encumbered by this condition have had similar journeys. Hang in there with us. There is nothing but good will and loving kindness. Be free of suffering today. Chris
Hi Colleen, my story is similar to yours including the planters fasciitis , and not being able to see a neurologist until January. In addition to what you are doing, I went off my statins, am taking, gabapentin ( so far it doesn't help, but sometimes helps me sleep) Alpha Lipolic Acid, CBD oil, neuropathic shoes, acupuncture, massage therapy, a chiropractor, and pilates. This is expensive and time consuming. The acupuncture and massage therapy seem to be helping a bit, but my conclusion is that PN has a mind of its own and some days are better than others. Have you had blood work to check for autoimmune diseases or low B 12. Mine is idiopathic which seems to make it harder to treat. So, know you are not alone.
Connect
Hello and welcome! Wish I could say glad to have you but, truthfully I'd rather you not need to be here. Life has strange twists and turns so here you are and here we are! It sounds like you are doing a great job at be self sufficient and proactive. Soak up the knowledge in this forum and remember we are all very different with different experiences especially when it comes to neurological disorders. 2020 can't come fast enough for you, I'm sure. Sorry, you must wait but being your own advocate is one of the best things you can do so, keep up the good work!!! Take care and my good wishes are sent your way.
Rachel