Well, something is amiss.

I am not a fan of your doctor saying "let's wait 12 months, then see and if, decide...!"

The first thing to consider is seeing an oncologist, one who focuses and has experience in managing PCa.

Your husband has been on Lupron for six years. It may be that the muscle and skeletal pain he feels is a function of the toxicity of Lupron.

Water under the bridge now but his urologist should have done a baseline bone density scan, advised him of ways he could counter the side effects such as resistance training, taking supplements such as D3 and Calcium and in progress scans to determine if stronger medications may be necessary.

His urologist should also have considered ordering in progress PSMA scans to check for PCa activity even in the absence of PSA increase, a possibility.

So, what would I do...?

Fire my urologist...
Find a good oncologist
Ask for a PSMA scan to see if anything is going on
Ask for a bone density scan
Discuss treatment options other than Lupron monotherapy
Start building a multi-disciplinary team to look after his health, easier said than done, I know...

There are other treatment options, a medical oncologist could and should discuss those with you and your husband.

This may be of interest - https://www.urotoday.com/conference-highlights/aua-2026/aua-2026-prostate-cancer/169028-aua-2026-implementation-of-a-multidisciplinary-quality-initiative-to-mitigate-and-reduce-the-side-effects-of-androgen-deprivation-therapy-adt-in-prostate-cancer-patients-based-on-the-prostate-cancer-360-pc360-working-group-recommendations.html

and this,,,https://www.urotoday.com/conference-highlights/apccc-2026/168583-apccc-2026-what-role-does-plays-quality-of-life-in-this-setting.html

Kevin