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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@rwinney

I'm so sorry to hear this and relate to most everything you say. First things first...find a Neurologist pronto. Pain Management is not Neurology and it's my opinion that you need better guidance and a more clear path forward. Im rooting for you. Keep us posted and good luck.
Rachel

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Replies to "I'm so sorry to hear this and relate to most everything you say. First things first...find..."

Sorry, time was limited before with my response. I'd also like to add that you are the first person I've heard speak of full leg cramping and numbness. My legs and arms experience this and it's debilitating. My best relief during these flares is a topical called Topricin Fibro Cream $14. I generously rub it in all over all limbs, shoulder, hands, feet then use a microwavable heat pack and wrap my worse areas first then rotate. Sometimes, I wrap both legs together with heat around calves then with a blanket tightly around both legs. Tightening and losening muscles may help or applying pressure to areas. For instance, when my shoulder and arm flare I literally lean against arm of couch to apply pressure. Rest can be a big help too along with breathing, quiet and calmness to help settle the nerves. The viscous cycle of pain and anxiety is an eye opener. I hear your words and live them regarding dreading bedtime. I bring heat to bed as well. Once I fall asleep I'm usually out but getting asleep is the problem. Many nights I end up sleeping in my recliner due to insomnia and or pain and discomfort in body and head. I take 165mg of Lyrica Controlled Release with dinner. This may help my sleeping in addition to Duloxetine (Cymbalta) in the morning. I take hydrocodone for pain and it is currently dragging with effectiveness. Many daily supplements in between and receive lidocaine infusions which are doing less and less for me, I feel. I have Small Fiber Neuropathy which shares many commonalities with Fibromyalgia. I'm hoping you get better clarification from a Neurologist. Not a bad idea to be tested for Small Fiber Neuropathy via skin punch biopsy as Fibro has been shown to morph into SFN. There may be only so much that can be done but I'm keeping hope alive and you should too. Keep trying and experimenting with the next step. Being debiliated is no fun at any age. Next up for me may be Plasmapherisis and medical marijuana. I hope any of what I've said helped in some way and that today and tonight bring you relief.
Rachel