Hello, just signed up at Mayo Clinic so I could post in this thread.
I'm a 34 year old male with Small Fiber Neuropathy. I had all the neurological and blood tests to rule out any of the major concerns like diabetes, etc. So, therefore, we landed on alcohol as the cause since I had been an abuser (6+ drinks everyday for 10+ years). I have since stopped drinking any alcohol and it's been about 6 months. I have noticed a slight improvement, in that the "worst" of my symptoms isn't as bad as it was, but there's still definitely a very noticeable tingling and numbness in the bottom half of legs, top of head, tips of nose, fingers etc.
So I have a couple of questions for anyone else who may have experience living with alcohol caused SFN. 1) Did you ever fully heal or become symptom-less after quitting alcohol and if so how long did it take? 2) If I go as long as up to a couple of years without alcohol to try and heal, and it just simply appears that the damage I caused is permanent, would it be at all possible to become a VERY moderate drinker of alcohol without making the current SFN any worse? I'm talking like 2 drinks a week MAX and going months at a time without any drinks at all. Or is it that, once a person has SFN, any amount of alcohol at all will keep damaging the nerves? I haven't been able to find any info on this at all and doctors seem to think it's a crap shoot at this point whether I heal or not, so I'm looking for personal experiences.
Any information is greatly appreciated.
Thank you
Hi @maddholly, Welcome to Connect. I have idiopathic small fiber PN. Once I found out alcohol damages nerves I stopped drinking. I have no medical training or background but from the reading I've done if you have neuropathy any alcohol is not going to help your body if it is trying to recover. Here are a couple of articles that may be helpful.
Alcoholic Polyneuropathy Issues & Treatment
-- https://www.alcohol.org/comorbid/polyneuropathy/
Alcoholic neuropathy
-- https://medlineplus.gov/ency/article/000714.htm
Alcoholic neuropathy: possible mechanisms and future treatment possibilities
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3370340/
I know the initial diagnosis of neuropathy can be pretty discouraging but if you learn as much as you can about the condition and find out what helps others, you might find something that helps you. Have you looked into taking any supplements or vitamins to help with the symptoms?