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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@rosy33

Good Morning @ew100, The letters PIN are short for Peripheral Idiopathic Neuropathy, something I learned on another support site (NeuroTalk.com). I believe depletion of the B vitamins, mainly B1,12 and 6 have a definite effect on neuropathy. My urologist has taken a course in health and wellness and is helping me with vitamins and supplements. I just joined her group this week and started taking a special packet of daily vitamins. I will meet with her 5 weeks from now to see if it makes a difference in the symptoms of my PIN. I decided to do this because I believe nutrition and vitamins are essential to our health, especially at our age. There are so many different brands and kinds of vitamins that can be very confusing. My daughter is a certified health and wellness coach, and has finally convinced me that "We are what we eat". I have given up sugar and drinking smoothies and herbal teas which have helped me to lose 30 pounds over a period of 2 years (mostly belly fat). My daughter can't prescribe any tests so that's where my urologist comes in. Every other doctor I have ever talked to about vitamins, nutrition or neuropathy doesn't know anything about any part of it, even the so-called Neurologists. I asked my PC why my ankle turns white when I flex it and why it's red and hot, her answer was, "I don't know". We can learn more here in these groups with others that are in the same predicament as we are. I am into the nutrition side of therapy rather than meds. I am trying to stay away from any prescriptions for as long as I can. I am more than willing to help if I can.....😍

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Replies to "Good Morning @ew100, The letters PIN are short for Peripheral Idiopathic Neuropathy, something I learned on..."

The whole question of how Vitamin B fits into this is really interesting to me. The last time my B12 was tested it was twice as high as the normal range. Both my doctor and Neurologist said that a good thing and had nothing to do with the burning of my feet. My Neurologist said that in his career (15 years?) he has only seen one case of neuropathy that was due to B12 deficiency...