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Long-Term Reclast Side Effects
Osteoporosis & Bone Health | Last Active: May 31 8:52am | Replies (37)Comment receiving replies
@daisy17 Initial compression fractures occurred after going over a few waves in a small boat. The succession of fractures occurred after I had healed from the first set, one from lifting a sweater to a top shelf, and two while recovering in bed. My Lumbar Spine was -4.1 in 2009 and -4.8 in 2014. I fractured 2016. I would recommend you be a proactive as you can in doing some sort of bone builder/protection. It was seriously the most painful and dibilitating time of my life. I'm sure you have been to an endocrinologist ? After 10 years on Prolia, my sister just found out she had nonsymptom Celiac, which contributed to her bone loss. That test should have been done right in the beginning. We certainly have to research and advocate for ourselves.
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@broken13 Thank you for the note about Celiac disease and osteoporosis! I plan to get self-play tested now that I have researched this after seeing your post.
There is some disagreement about the need to test for all OP patients.
Here is a source that says yes for example:
https://source.washu.edu/2005/02/osteoporosis-patients-should-be-screened-for-celiac-disease-study-says/
But this paper says testing should be done if there is OP plus some other reason (such as family history of CD):
https://pmc.ncbi.nlm.nih.gov/articles/PMC3796969/
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@broken13 Yes, I'm seeing an endocrinologist. Your story is frightening to me. As I said, I can't take Forteo or Tymlos due to parathyroid issues that are being monitored. Surgery to remove the affected parathyroid is not possible due to previous neck surgeries and unsuccessful removal of glands that were healthy but encased in scar tissue. It's possible that the affected parathyroid may be my only "working" gland. My only option is chemical ablation, which would be a 3-day process at the Mayo Clinic in MN. I don't want to take Prolia or Evenity, and read bisphosphonates offer minimal protection against fractures. I'm 76. I have osteoarthritis in my spine which I read can skew the DEXA scores. I was tested for celiac which is normal.