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Partner developing memory issues

Caregivers: Dementia | Last Active: Apr 5 6:58am | Replies (107)

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Profile picture for susanfrei @susanfrei

@sueinmn Im fighting this battle alone, in NJ. I was diagnosed 2001, right after 9/11 I flew to LA to see Dr. Jay Goldstein.

All the great doctors are gone now. My Primary said " if I cant see it, I cant treat it ".
I told her that's my whole f$*kng disease.

Now its just my neurologist who prescribes gabapentin. Im lost after I weaned myself off pain meds. A week later I swallowed a bottle of pills. Obviously it didn't work.

I am NOT depressed, I have SEVERE ME and NO support, no friends, no family, no medical support.

Help! PS I am an MSW myself. Dont suggest therapy

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Replies to "@sueinmn Im fighting this battle alone, in NJ. I was diagnosed 2001, right after 9/11 I..."

@susanfrei Have you considered joining the members of this Mayo Connect discussion?
https://connect.mayoclinic.org/discussion/mecfs/
I understand that you are frustrated, but I don' agree that "...All the great doctors are gone now..." - you just haven't found the resources yet. Have you checked into this clinic:
https://www.uhnj.org/department/neurosciences/chronic-fatigue-fibromyalgia-syndrome-center/