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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@frederick45

Hey guys, new this group! Looking for some advice! I’m 46 years old and for the last 4 months I’ve been having burning in my arms and shoulders. In addition I’ve started getting a lot of burning in my calf and upper leg! It’s pretty much all the time ! I’m constantly moving and still have lots of strength in my legs. But they are always burning and then they get a bit tired. It’s all the time at work and when I’m not moving! I’m not a diabetic, don’t smoke, don’t drink and I’m after losing 50 lbs since February 2019! My doctor doesn’t think it’s vascular! I’m at a loss! Looking for some direction! I would appreciate any advice!!! Thanks take care! Fred

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Replies to "Hey guys, new this group! Looking for some advice! I’m 46 years old and for the..."

Hi Fred and welcome to Connect. You will find great caring, support and advice here with alot of people who share your symptoms and concerns.

First step is visiting a neurologist. It sounds as though you have not yet. There will be a sequence of testing from Nerve Conduction studies and EMG testing to Skin Punch biopsy if necessary. These tests will determine if you have nerve damage aka neuropathy.

If it is neuropathy, we are all quite familiar here. There can be a variety of underlying causes to neuropathy. There are many tests to be conducted to search for an underlying cause. If no cause presents then it would be considered idiopathic. Treatments vary depending on cause.

One step at a time however. My advice is not to get too far ahead of yourself but definitely get moving with a neurologist.

I wish you all the best and please keep up updated with your findings. Hang in there Fred.

Rachel

PS...I join you at 46 with symptoms beginning. Now 49 and happy to help with my experience!

Hi Fred @frederick45, I would like to add my welcome to Connect along with @rwinney and also mention you are not alone with your symptoms. Other members also have similar symptoms and hopefully will be able to share what's helped them. I agree with Rachel that you might want to see a neurologist or see if your doctor will give you a referral to a neurologist so that you have a diagnosis. Have you received any suggestions from your doctor?

Keep up the good work you are doing now with your health and learn as much as you can about your health condition. It's proabably the number one thing you can do as a patient to help yourself.