@tiredoflc

I could not agree more. I have had similar experiences to yours.

My internist has not cut ties, but other than running rule-out tests, he has not been helpful at all with treatment and I had no diagnosis.

Overnight pulse oximetry done the first night after my first appointment at Mayo Clinic revealed IST. Subsequent tests identified POTS.

I wish I wouldn't have waited 3 years to go there, but I was too sick to travel.

I was referred to their Long COVID/CFS clinic where I received an ME/CFS and Long COVID diagnosis. I finally started to receive treatment. They are only consultative, and I can send messages there, but I am bumped back to my local provider for everything, which doesn't equal much support. (I hope this changes for other people.) My primary knows a nurse practitioner who handles POTS and she has been very helpful. I am going to start a medication that was recommended by cardiology at Mayo. I really hope it helps. Just having support for dealing with POTS locally has been a relief.

I feel like my primary is doing what he can within the limitations of knowledge. I was able to get an order with the infusion center that allows me to receive IV fluid therapy weekly, if needed.

I feel really bad for anybody else who lives here because there is no one who treats it, with the exception of chiropractors or nurse practitioners - without MD or DO's supervision - who do "functional medicine." No thanks.

I was quoted $350 per month with a 6-month commitment required and labs costing $500 to $1,000.

Anyway, enough of my griping.

I sure hope you can find someone locally and I'm so sorry your primary cut ties.