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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@jeffrapp

I have small fiber peripheral neuropathy, and I experience symptoms exactly like yours: muscle twitching and a strange feeling of water running down my leg. You aren't crazy, it is a manifestation of the disease.
Your neurologist is probably right. PN is a strange disease with multiple manifestations.
Having to wait for an appointment for a few months is quite usual, as neurologists are in short supply these days. My advice is to stick with the one you have, if you otherwise like him/her. Nothing bad is going to happen to you in a few months of waiting, other than the anxiety/depression you mentioned. If you haven't already done so, you should get an appointment with your PCP asap to discuss these problems and what to do about them. Don't be bashful about reporting all your psychological symptoms.
As for your husband, he sounds like a good guy. Try to remember that he is also suffering from your PN, and that he will never "get it" completely, because he doesn't have it.
Try to get to the place where you accept the disease, then go from there. It's a hard thing to do in the beginning, because it threatens your self image. Nevertheless, fear, denial and anxiety will always make things worse.

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Replies to "I have small fiber peripheral neuropathy, and I experience symptoms exactly like yours: muscle twitching and..."

Thank you for your response. I have scheduled an appointment with my PCP for Friday. Thanks again.