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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Good evening @artscaping ,
I've had numerous labs and testing done to find a root cause of the small fiber neuropathy but nothing has come back to say that's what caused it. I do exercise and eat pretty healthy. I have a strong faith in God and that helps me stay positive and cope.
I really hope they come out with some treatment that can repair the nerves.
I'm doing okay without taking medication. It never really helped with my neuropathy symptoms so I would rather find a natural remedy.
I have not explored the medical cannabis option. Would that require a prescription?
My anger about the condition comes and goes. Most days I"m okay but at times this condition can be overwhelming and I can lash out.
Thank you for your concern and help on this. Ashley
Replies to "Good evening @artscaping , I've had numerous labs and testing done to find a root cause..."
@ashley302, Good afternoon Ashley. Thanks for responding. It seems like you are on a bit of a roller coaster from day to day as you seek relief from the burning pain as well as your disappointment and anger.
You may just see the nerve repair treatment in your lifetime. As I understand this, we need to be able to extend the lives of the nerves. If bruised or damaged, that process is very slow. During that time many of us succumb to “hope in a jar” products.
You asked about cannabis. Is your purpose right now to alleviate pain and reduce anger? I have a cannabis regimen based on just two products, tinctures and topicals.
You may need a prescription depending on where you live. If it is California then you just need proof of your age 21. There are helpful folks in the dispensaries. And I am always here for you.
Be safe and protected from inner and outer harm. Chris
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@ashley302
When my neuropathy pain got unbearable, I had a spinal cord stimulator implant, and had an 80% reduction in the pain. That worked for the first year, then I had to get the stimulator adjusted every few months. I have an appointment with the pain specialist in a couple of weeks, and we'll evaluate the benefit of a new medication he prescribed - imipramine. It's really the first medication that has helped with the pain without bad side effects. Morphine sulfate contin takes the edge off the pain, but it doesn't do the whole job. I forget to take the midday pill, which is okay most days, but I should have taken it today.
Of the many meds I've tried over the past five years, Lyrica was the only one that gave me relief. Unfortunately, after a few weeks of gradually increasing the dosage, I had a bad reaction to it. My wife took me to the ER because I was incoherent, lost my memory, couldn't get a whole sentence out, and in the ER I went tachycardic. That got everyone's attention! They were all set to defibrillate, but my heart went back to a normal rhythm right when they were going to shock me. One more thing to add to my list of ailments.
I met with a doctor to discuss a dorsal root ganglion stimulator implant. It was an excellent appointment. She had a conversation with the Abbott rep who adjusts my stimulator, and I'll be seeing him after the appointment with the pain specialist. The surgeon is more knowledgeable than the Abbott rep, so I hope she gave him some good information that will affect the way he resets my scs. I don't want to make any changes in my treatment until I see the pain specialist.
Sometimes it seems as though our lives revolve around doctors and medications. I agree, Ashley, that it would be really nice to be pain free even just for a few days. I look forward every day to being in heaven. Lord, come quickly, as one of the last verses in the Bible says.
Jim