← Return to HRT and Strensiq / HPP symptoms

Discussion
dmshope avatar

HRT and Strensiq / HPP symptoms

Osteoporosis & Bone Health | Last Active: May 22 9:05am | Replies (9)
Comment receiving replies
Profile picture for dmshope @dmshope

@wondering1 Gosh I so appreciate you taking the time to write to me of your expereinces.
Thank you. At least one person wiht HPP is on HRT successfully.
May I ask what dosage HRT you are taking??

My endo was concerned that since HRT is a mild antireposrtive, it may be risky with HPP. This is due to the fact that bisphosphanete which are also antirepsotives are strictly prohibited with HPP. However HRT is not the same mechanism as bisphosphantes.

Moreover if needed in the future, tymlos anabolic PTH is sometimes used for healing with HPP and is not contradicated for HPP.

Sending hugs and healing light. May you be well.

Jump to this post

Replies to "@wondering1 Gosh I so appreciate you taking the time to write to me of your expereinces...."
dmshope | @dmshope | May 21 8:49am

@dmshope Lastly, would you feel comfortable sharing your endos contact information?

VIEW AND REPLY
wondering1 | @wondering1 | May 21 1:29pm

@dmshope It makes me feel so good to know you are out there facing something similar...even though I wish neither of us was facing it.

I'm on .05 mg estradiol patch and 100 mg micronized progesterone pill.

What you are saying about estradiol having slight anti-resportive properties is true. What my endocrinologist (head of the bone clinic at Tufts Medical in Boston) said exactly was "It's great you are already on HRT. If you weren't, that is what I would have suggested."

She did say that Tymlos is ok with HPP. And I did a little research and saw several mentions of that. The problem is what to do after Tymlos. My understanding is that if you don't follow Tymlos with some type of antiresorptive, you lose your gains. So while Tymlos is ok for us HPP folks, without a way to lock in the gains afterwards, I'm not sure how much good it would do.

For what it is worth, several years before anyone realized I had HPP, I had 5 years worth of antiresorptives and nothing terrible seems to have happened (yet??).

Hang in there! And please keep in touch!

VIEW AND REPLY