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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 6 days ago | Replies (6004)

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@jakedduck1

@johnbishop
Hi John,
Did your Neuropathy start in your feet and progress above your ankles or start where it is?
Where are you affected by
Polymyalgia Rheumatica?
Jake

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Replies to "@johnbishop Hi John, Did your Neuropathy start in your feet and progress above your ankles or..."

Hi Jake @jakedduck1,
My neuropathy started in my toes and gradually worked up to just below both knees before I finally decided to get a diagnosis by getting a referral from my primary care doc to a neurologist. That was in March of 2016. Then I found some supplements in a closed Facebook group and have been on them since Sept 2016. After about 2 months of taking the supplements it seemed like the numbness and gotten better and was a little above the ankles. I'm still taking the supplement but the numbness hasn't gotten any better but it also hasn't gotten any worse which is a win for me since the neurologist told me that it would get worse over time.

The Polymyalgia Rheumatica has been pretty much all over my body for me although when it was active it seemed mostly painful in my shoulders, arms and legs. Mostly in the joints. I've had 2 occurrences. The first one was in 2007 and lasted until mid 2010. Then it went into remission for about 6 years. The second time around it lasted a year and half and wasn't quite as bad because I knew some things that would help and i was able to keep my weight gain to a minimum. Tapering off of the prednisone was my biggest challenge.