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Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 14 11:51am | Replies (29)
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Replies to "Hi @andreak78 I didn’t realize a couple of months have zipped by already since your transplant!..."
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@loribmt Recovery was going so smoothly with minimal bumps in the road until a little GvHD in my guts showed up. I'm nearly weaned off steroids for that at the moment. My blood counts have fallen in the last several weeks and this week they were back to levels I had at day 30 (I'm day 121 now). I messaged my team again this week with concerns about my counts and they reduced my Tac. With counts falling I'm having issues with my heart rate being elevated at rest and spiking during tasks. I received a STR CD3 test interpretation today and the donor value has fallen to 84%. It was 95% in March and >95% in April. To say I'm concerned is an understatement. I guess I'm seeking some reassurance with this. Feeling a little scared.