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HRT and Strensiq / HPP symptoms
Osteoporosis & Bone Health | Last Active: May 22 9:05am | Replies (9)Comment receiving replies
@dmshope i was recently diagnosed with HPP. Other than my osteoporosis, I don’t have common HPP symptoms, and haven’t fractured yet either. My doc mentioned Strensiq but didn’t recommend it at this point.
Because of the HPP, I’m not taking any osteoporosis meds now, except HRT, which I’ve been on for 1-1/2 years. My endocrinologist said the HRT is my best bet for now.
She said that because HPP is rare and there isn’t a lot of good data about how to proceed with osteoporosis treatment in patients with HPP. But she said that strangely after seeing few patients with HPP for many years, she’s seen a huge uptick this year. She’s hoping to learn more at this year’s bone conference in Boston.
I’m sorry that you appear to have HPP. Good luck as you try to sort through this. And if you learn anything helpful, I’d love to know.
Replies to "@dmshope i was recently diagnosed with HPP. Other than my osteoporosis, I don’t have common HPP..."
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@wondering1 Gosh I so appreciate you taking the time to write to me of your expereinces.
Thank you. At least one person wiht HPP is on HRT successfully.
May I ask what dosage HRT you are taking??
My endo was concerned that since HRT is a mild antireposrtive, it may be risky with HPP. This is due to the fact that bisphosphanete which are also antirepsotives are strictly prohibited with HPP. However HRT is not the same mechanism as bisphosphantes.
Moreover if needed in the future, tymlos anabolic PTH is sometimes used for healing with HPP and is not contradicated for HPP.
Sending hugs and healing light. May you be well.