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Dermatomyositis and Struggling
Autoimmune Diseases | Last Active: Jun 1 9:21am | Replies (19)Comment receiving replies
9 years…I’m almost 2 years. I’m hoping I can get to a day that seems ok. I think I have some neuropathy in my feet. Mayo appt coming up. Also, new drug being released in late Sept…have you read about that?
Replies to "9 years…I’m almost 2 years. I’m hoping I can get to a day that seems ok...."
@livinglife1 I have been on imuron for 9 years it is working pretty well but I'll always be on the 5 mg of prednisone I've tried to go off of it I cannot do it I get a lot of nausea good luck at your appointment
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No I haven't but I will be asking about it yes I have issues in the winter with my toes turning bluish purple I have learned to wear socks even though I don't want to haha